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The Grand Meridian ballroom, which holds 1,000 people, was packed as well-wishers flooded in throughout the night to celebrate with Jerika Bolen, 14, diagnosed with spinal muscular atrophy type 2, at her prom Friday, July 22, in Appleton, Wis.
Jerika Bolen is surrounded by a sea of guests at her prom Friday at the Grand Meridian in Appleton, Wis. The ballroom was packed for the five-hour dance in celebration of Jerika.(Photo: Danny Damiani/USA TODAY NETWORK-Wisconsin)
APPLETON, Wis.<span style="color: Red;">*</span>— They came from California, Florida, Indiana and points in-between. A<span style="color: Red;">*</span>YouTube star made a surprise appearance, members of<span style="color: Red;">*</span>a favorite boy band poured their hearts out in a<span style="color: Red;">*</span>video message and flowers arrived from around the world.
All for a 14-year-old girl from Appleton, Wis., they had never met.
Jerika Bolen has spinal muscular atrophy type 2. The disease destroys nerve cells in the brain stem and spinal cord that control voluntary muscle activity, and a lack of movement causes the muscles to waste away.<span style="color: Red;">*</span>Jerika has never walked, and she said her pain is<span style="color: Red;">*</span>a seven on a scale of one to 10 on her<span style="color: Red;">*</span>best days. She can speak and has some movement of her hands, but the disease<span style="color: Red;">*</span>—<span style="color: Red;">*</span>and the pain<span style="color: Red;">*</span>—<span style="color: Red;">*</span>are only going to get worse.
Earlier this summer,<span style="color: Red;">*</span>with the support of her ever-dedicated mother, Jen, she decided that, while she can still make her desires known, she will be put in Hospice care, unhook her ventilator and die.
USA TODAY
Appleton teen makes heartbreaking decision to die
But first, she wanted her last wish<span style="color: Red;">*</span>—<span style="color: Red;">*</span>a prom. Dubbed "J's Last Dance," she took to the dance floor<span style="color: Red;">*</span>Friday night<span style="color: Red;">*</span>as a steady stream of well-wishers flooded into the Grand Meridian ballroom in Appleton to say goodbye to a girl whose attitude in the face of heartbreaking misery has been inspirational.
As she soaked<span style="color: Red;">*</span>in Friday's hoopla, her<span style="color: Red;">*</span>hair dyed a<span style="color: Red;">*</span>shiny<span style="color: Red;">*</span>blue and wearing<span style="color: Red;">*</span>sparkling lipstick to<span style="color: Red;">*</span>complement<span style="color: Red;">*</span>her gorgeous greenish<span style="color: Red;">*</span>blue gown, Jerika said she was thankful but a bit<span style="color: Red;">*</span>perplexed as to why people have<span style="color: Red;">*</span>been so deeply moved by her story, which was first reported by The Post-Crescent.
“It’s awesome,” she said of Friday's party. “It’s fun. It’s a lot of people, and they look up to me. It’s kind of scary<span style="color: Red;">*</span>because I don’t know what they’re looking up to me for.”
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Jerika Bolen greets guests in the Grand Meridian lobby before her prom Friday, July 22, 2016 in Appleton, Wis. The ballroom, which holds 1,000 people, was packed as well-wishers flooded in throughout the night to celebrate with the 14-year-old Appleton girl who suffers from a terminal illness and is expected to die by the end of summer. Dubbed ÒJÕs Last Dance,Ó the prom was a final wish for Jerika, who has chosen to have her ventilator disconnected at the end of August because the chronic pain from her disease, spinal muscular atrophy type 2, has become overwhelming and the prognosis is bleak.Danny Damiani/USA TODAY NETWORK-Wisconsin<span style="color: Red;">*</span> USA TODAY NETWORK-Wisconsin
Jerika Bolen sits with her mother Jen Bolen in the limo from their home to the Grand Meridian where Jerika's prom is held Friday, July 22, 2016 in Appleton, Wis. The family had a police escort through town. The ballroom, which holds 1,000 people, was packed as well-wishers flooded in throughout the night to celebrate with the 14-year-old Appleton girl who suffers from a terminal illness and is expected to die by the end of summer. Dubbed “J’s Last Dance,” the prom was a final wish for Jerika, who has chosen to have her ventilator disconnected at the end of August because the chronic pain from her disease, spinal muscular atrophy type 2, has become overwhelming and the prognosis is bleak. Danny Damiani/USA TODAY NETWORK-Wisconsin<span style="color: Red;">*</span> USA TODAY NETWORK-Wisconsin
Shelby Pascoe and Brittany Bucklan work on Jerika Bolen's hair and makeup before her prom Friday, July 22, 2016 at the Grand Meridian in Appleton, Wis. The ballroom, which holds 1,000 people, was packed as well-wishers flooded in throughout the night to celebrate with the 14-year-old Appleton girl who suffers from a terminal illness and is expected to die by the end of summer. Dubbed ÒJÕs Last Dance,Ó the prom was a final wish for Jerika, who has chosen to have her ventilator disconnected at the end of August because the chronic pain from her disease, spinal muscular atrophy type 2, has become overwhelming and the prognosis is bleak.
Danny Damiani/USA TODAY NETWORK-Wisconsin<span style="color: Red;">*</span> USA TODAY NETWORK-Wisconsin
Lt. Jeff Miller and Chief Todd Thomas, with the Appleton Police Department, greet Jerika Bolen before giving her a police escort to her prom Friday, July 22, 2016 at the Grand Meridian in Appleton, Wis. The ballroom, which holds 1,000 people, was packed as well-wishers flooded in throughout the night to celebrate with the 14-year-old Appleton girl who suffers from a terminal illness and is expected to die by the end of summer. Dubbed ÒJÕs Last Dance,Ó the prom was a final wish for Jerika, who has chosen to have her ventilator disconnected at the end of August because the chronic pain from her disease, spinal muscular atrophy type 2, has become overwhelming and the prognosis is bleak.
Danny Damiani/USA TODAY NETWORK-Wisconsin<span style="color: Red;">*</span> USA TODAY NETWORK-Wisconsin
Jerika Bolen, goes through the process of picking a tiara before her prom Friday, July 22, 2016 at the Grand Meridian in Appleton, Wis. The ballroom, which holds 1,000 people, was packed as well-wishers flooded in throughout the night to celebrate with the 14-year-old Appleton girl who suffers from a terminal illness and is expected to die by the end of summer. Dubbed ÒJÕs Last Dance,Ó the prom was a final wish for Jerika, who has chosen to have her ventilator disconnected at the end of August because the chronic pain from her disease, spinal muscular atrophy type 2, has become overwhelming and the prognosis is bleak.
Danny Damiani/USA TODAY NETWORK-Wisconsin<span style="color: Red;">*</span> USA TODAY NETWORK-Wisconsin
Jerika Bolen goes through the final stages of hair and makeup before her prom Friday, July 22, 2016 at the Grand Meridian in Appleton, Wis. The ballroom, which holds 1,000 people, was packed as well-wishers flooded in throughout the night to celebrate with the 14-year-old Appleton girl who suffers from a terminal illness and is expected to die by the end of summer. Dubbed ÒJÕs Last Dance,Ó the prom was a final wish for Jerika, who has chosen to have her ventilator disconnected at the end of August because the chronic pain from her disease, spinal muscular atrophy type 2, has become overwhelming and the prognosis is bleak.
Danny Damiani/USA TODAY NETWORK-Wisconsin<span style="color: Red;">*</span> USA TODAY NETWORK-Wisconsin
Members of the Appleton Police department wait outside Jerika Bolen's home to give her a police escort to her prom Friday, July 22, 2016 at the Grand Meridian in Appleton, Wis. The ballroom, which holds 1,000 people, was packed as well-wishers flooded in throughout the night to celebrate with the 14-year-old Appleton girl who suffers from a terminal illness and is expected to die by the end of summer. Dubbed ÒJÕs Last Dance,Ó the prom was a final wish for Jerika, who has chosen to have her ventilator disconnected at the end of August because the chronic pain from her disease, spinal muscular atrophy type 2, has become overwhelming and the prognosis is bleak.
Danny Damiani/USA TODAY NETWORK-Wisconsin<span style="color: Red;">*</span> USA TODAY NETWORK-Wisconsin
Flowers sent to Jerika Bolen's prom from a family in Kuwait Friday, July 22, 2016 at the Grand Meridian in Appleton, Wis. The ballroom, which holds 1,000 people, was packed as well-wishers flooded in throughout the night to celebrate with the 14-year-old Appleton girl who suffers from a terminal illness and is expected to die by the end of summer. Dubbed ÒJÕs Last Dance,Ó the prom was a final wish for Jerika, who has chosen to have her ventilator disconnected at the end of August because the chronic pain from her disease, spinal muscular atrophy type 2, has become overwhelming and the prognosis is bleak.Danny Damiani/USA TODAY NETWORK-Wisconsin<span style="color: Red;">*</span> USA TODAY NETWORK-Wisconsin
Jerika Bolen takes a look at the candy buffet featuring a unicorn at her prom Friday, July 22, 2016 at the Grand Meridian in Appleton, Wis. The ballroom, which holds 1,000 people, was packed as well-wishers flooded in throughout the night to celebrate with the 14-year-old Appleton girl who suffers from a terminal illness and is expected to die by the end of summer. Dubbed ÒJÕs Last Dance,Ó the prom was a final wish for Jerika, who has chosen to have her ventilator disconnected at the end of August because the chronic pain from her disease, spinal muscular atrophy type 2, has become overwhelming and the prognosis is bleak.
Danny Damiani/USA TODAY NETWORK-Wisconsin<span style="color: Red;">*</span> USA TODAY NETWORK-Wisconsin
Jerika Bolen is surrounded by a sea of guests at her prom Friday, July 22, 2016 at the Grand Meridian in Appleton, Wis. The ballroom, which holds 1,000 people, was packed as well-wishers flooded in throughout the night to celebrate with the 14-year-old Appleton girl who suffers from a terminal illness and is expected to die by the end of summer. Dubbed ÒJÕs Last Dance,Ó the prom was a final wish for Jerika, who has chosen to have her ventilator disconnected at the end of August because the chronic pain from her disease, spinal muscular atrophy type 2, has become overwhelming and the prognosis is bleak.Danny Damiani/USA TODAY NETWORK-Wisconsin<span style="color: Red;">*</span> USA TODAY NETWORK-Wisconsin
Jerika Bolen dances with friend Avianna Akers during her prom Friday, July 22, 2016 at the Grand Meridian in Appleton, Wis. The ballroom, which holds 1,000 people, was packed as well-wishers flooded in throughout the night to celebrate with the 14-year-old Appleton girl who suffers from a terminal illness and is expected to die by the end of summer. Dubbed ÒJÕs Last Dance,Ó the prom was a final wish for Jerika, who has chosen to have her ventilator disconnected at the end of August because the chronic pain from her disease, spinal muscular atrophy type 2, has become overwhelming and the prognosis is bleak.
Danny Damiani/USA TODAY NETWORK-Wisconsin<span style="color: Red;">*</span> USA TODAY NETWORK-Wisconsin
Jen Bolen talks and dances with her daughter Jerika at her prom Friday, July 22, 2016 at the Grand Meridian in Appleton, Wis. The ballroom, which holds 1,000 people, was packed as well-wishers flooded in throughout the night to celebrate with the 14-year-old Appleton girl who suffers from a terminal illness and is expected to die by the end of summer. Dubbed ÒJÕs Last Dance,Ó the prom was a final wish for Jerika, who has chosen to have her ventilator disconnected at the end of August because the chronic pain from her disease, spinal muscular atrophy type 2, has become overwhelming and the prognosis is bleak.
Danny Damiani/USA TODAY NETWORK-Wisconsin<span style="color: Red;">*</span> USA TODAY NETWORK-Wisconsin
The cake at Jerika Bolen's prom Friday, July 22, 2016 at the Grand Meridian in Appleton, Wis. The ballroom, which holds 1,000 people, was packed as well-wishers flooded in throughout the night to celebrate with the 14-year-old Appleton girl who suffers from a terminal illness and is expected to die by the end of summer. Dubbed ÒJÕs Last Dance,Ó the prom was a final wish for Jerika, who has chosen to have her ventilator disconnected at the end of August because the chronic pain from her disease, spinal muscular atrophy type 2, has become overwhelming and the prognosis is bleak.
Danny Damiani/USA TODAY NETWORK-Wisconsin<span style="color: Red;">*</span> USA TODAY NETWORK-Wisconsin
Alton Olson DJs during Jerika Bolen's Prom Friday, July 22, 2016 at the Grand Meridian in Appleton, Wis. The ballroom, which holds 1,000 people, was packed as well-wishers flooded in throughout the night to celebrate with the 14-year-old Appleton girl who suffers from a terminal illness and is expected to die by the end of summer. Dubbed ÒJÕs Last Dance,Ó the prom was a final wish for Jerika, who has chosen to have her ventilator disconnected at the end of August because the chronic pain from her disease, spinal muscular atrophy type 2, has become overwhelming and the prognosis is bleak.
Danny Damiani/USA TODAY NETWORK-Wisconsin<span style="color: Red;">*</span> USA TODAY NETWORK-Wisconsin
Jerika Bolen laughs with friends Haley Paradiso, Mackenzie Falck, Avianna Akers and Abby Martinez at her prom Friday, July 22, 2016 at the Grand Meridian in Appleton, Wis. The ballroom, which holds 1,000 people, was packed as well-wishers flooded in throughout the night to celebrate with the 14-year-old Appleton girl who suffers from a terminal illness and is expected to die by the end of summer. Dubbed ÒJÕs Last Dance,Ó the prom was a final wish for Jerika, who has chosen to have her ventilator disconnected at the end of August because the chronic pain from her disease, spinal muscular atrophy type 2, has become overwhelming and the prognosis is bleak.Danny Damiani/USA TODAY NETWORK-Wisconsin<span style="color: Red;">*</span> USA TODAY NETWORK-Wisconsin
Jerika Bolen has a facetime chat with the band New District during her prom Friday, July 22, 2016 at the Grand Meridian in Appleton, Wis. The ballroom, which holds 1,000 people, was packed as well-wishers flooded in throughout the night to celebrate with the 14-year-old Appleton girl who suffers from a terminal illness and is expected to die by the end of summer. Dubbed ÒJÕs Last Dance,Ó the prom was a final wish for Jerika, who has chosen to have her ventilator disconnected at the end of August because the chronic pain from her disease, spinal muscular atrophy type 2, has become overwhelming and the prognosis is bleak.
Danny Damiani/USA TODAY NETWORK-Wisconsin<span style="color: Red;">*</span> USA TODAY NETWORK-Wisconsin
A sign is held up during a performance at Jerika Bolen's prom that reads "#Jerika4PromQueen" Friday, July 22, 2016 at the Grand Meridian in Appleton, Wis. The ballroom, which holds 1,000 people, was packed as well-wishers flooded in throughout the night to celebrate with the 14-year-old Appleton girl who suffers from a terminal illness and is expected to die by the end of summer. Dubbed ÒJÕs Last Dance,Ó the prom was a final wish for Jerika, who has chosen to have her ventilator disconnected at the end of August because the chronic pain from her disease, spinal muscular atrophy type 2, has become overwhelming and the prognosis is bleak.
Danny Damiani/USA TODAY NETWORK-Wisconsin<span style="color: Red;">*</span> USA TODAY NETWORK-Wisconsin
Richie Giese, who goes by the name Social Repose on YouTube, greets Jerika Bolen at her prom Friday, July 22, 2016 at the Grand Meridian in Appleton, Wis. Giese is one of Jerika's idols. The ballroom, which holds 1,000 people, was packed as well-wishers flooded in throughout the night to celebrate with the 14-year-old Appleton girl who suffers from a terminal illness and is expected to die by the end of summer. Dubbed ÒJÕs Last Dance,Ó the prom was a final wish for Jerika, who has chosen to have her ventilator disconnected at the end of August because the chronic pain from her disease, spinal muscular atrophy type 2, has become overwhelming and the prognosis is bleak.Danny Damiani/USA TODAY NETWORK-Wisconsin<span style="color: Red;">*</span> USA TODAY NETWORK-Wisconsin
Gifts and items left for Jerika Bolen during her prom Friday, July 22, 2016 at the Grand Meridian in Appleton, Wis. The ballroom, which holds 1,000 people, was packed as well-wishers flooded in throughout the night to celebrate with the 14-year-old Appleton girl who suffers from a terminal illness and is expected to die by the end of summer. Dubbed ÒJÕs Last Dance,Ó the prom was a final wish for Jerika, who has chosen to have her ventilator disconnected at the end of August because the chronic pain from her disease, spinal muscular atrophy type 2, has become overwhelming and the prognosis is bleak.
Danny Damiani/USA TODAY NETWORK-Wisconsin<span style="color: Red;">*</span> USA TODAY NETWORK-Wisconsin
Guests at Jerika Bolen's prom are silhouetted against a green backdrop during the event Friday, July 22, 2016 at the Grand Meridian in Appleton, Wis. Jerika's colors for the prom where green and black The ballroom, which holds 1,000 people, was packed as well-wishers flooded in throughout the night to celebrate with the 14-year-old Appleton girl who suffers from a terminal illness and is expected to die by the end of summer. Dubbed ÒJÕs Last Dance,Ó the prom was a final wish for Jerika, who has chosen to have her ventilator disconnected at the end of August because the chronic pain from her disease, spinal muscular atrophy type 2, has become overwhelming and the prognosis is bleak.
Danny Damiani/USA TODAY NETWORK-Wisconsin<span style="color: Red;">*</span> USA TODAY NETWORK-Wisconsin
Jerika Bolen eats two pieces of cake at the end of her prom Friday, July 22, 2016 at the Grand Meridian in Appleton, Wis. The ballroom, which holds 1,000 people, was packed as well-wishers flooded in throughout the night to celebrate with the 14-year-old Appleton girl who suffers from a terminal illness and is expected to die by the end of summer. Dubbed ÒJÕs Last Dance,Ó the prom was a final wish for Jerika, who has chosen to have her ventilator disconnected at the end of August because the chronic pain from her disease, spinal muscular atrophy type 2, has become overwhelming and the prognosis is bleak.
Danny Damiani/USA TODAY NETWORK-Wisconsin<span style="color: Red;">*</span> USA TODAY NETWORK-Wisconsin
Richie Giese, who goes by the name Social Repose on YouTube, reaches out his hand to dance with Jerika Bolen Friday, July 22, 2016 at the Grand Meridian in Appleton, Wis. Giese is one of Jerika's idols and Jerika said one of the high points of her prom was meeting him. The ballroom, which holds 1,000 people, was packed as well-wishers flooded in throughout the night to celebrate with the 14-year-old Appleton girl who suffers from a terminal illness and is expected to die by the end of summer. Dubbed ÒJÕs Last Dance,Ó the prom was a final wish for Jerika, who has chosen to have her ventilator disconnected at the end of August because the chronic pain from her disease, spinal muscular atrophy type 2, has become overwhelming and the prognosis is bleak.
Danny Damiani/USA TODAY NETWORK-Wisconsin<span style="color: Red;">*</span> USA TODAY NETWORK-Wisconsin
Jerika Bolen dances with friends Mackenzie Falck, Haley Paradiso, and Avianna Akers during her prom Friday, July 22, 2016 at the Grand Meridian in Appleton, Wis. The ballroom, which holds 1,000 people, was packed as well-wishers flooded in throughout the night to celebrate with the 14-year-old Appleton girl who suffers from a terminal illness and is expected to die by the end of summer. Dubbed ÒJÕs Last Dance,Ó the prom was a final wish for Jerika, who has chosen to have her ventilator disconnected at the end of August because the chronic pain from her disease, spinal muscular atrophy type 2, has become overwhelming and the prognosis is bleak. Danny Damiani/USA TODAY NETWORK-Wisconsin<span style="color: Red;">*</span> USA TODAY NETWORK-Wisconsin
Jen Bolen is hugged by prom guests after the final dance of the night at her daughter Jerika's prom Friday, July 22, 2016 at the Grand Meridian in Appleton, Wis. The ballroom, which holds 1,000 people, was packed as well-wishers flooded in throughout the night to celebrate with the 14-year-old Appleton girl who suffers from a terminal illness and is expected to die by the end of summer. Dubbed ÒJÕs Last Dance,Ó the prom was a final wish for Jerika, who has chosen to have her ventilator disconnected at the end of August because the chronic pain from her disease, spinal muscular atrophy type 2, has become overwhelming and the prognosis is bleak.Danny Damiani/USA TODAY NETWORK-Wisconsin<span style="color: Red;">*</span> USA TODAY NETWORK-Wisconsin
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The hall was decorated in lime green and black, Jerika's<span style="color: Red;">*</span>favorite colors.<span style="color: Red;">*</span>The crowd overflowed the<span style="color: Red;">*</span>hall, which holds 1,000 people.<span style="color: Red;">*</span>A well-stocked candy buffet set up for guests was cleaned out in the first 90 minutes.
Friday was set aside for happiness, and the work to accomplish that goal had begun long<span style="color: Red;">*</span>before the disco ball started spinning above the DJ station.
The living room in the Bolen<span style="color: Red;">*</span>house, which Jerika shares with her mother, Jen Bolen,<span style="color: Red;">*</span>became a makeshift beauty salon on Friday afternoon as Jerika, her mom and several friends had their hair and makeup done.
Jerika<span style="color: Red;">*</span>wore a tiara and later added a prom queen sash to the ensemble.
The evening was momentous from the<span style="color: Red;">*</span>second Jerika emerged from the house.
Police and firefighters gathered at the curb<span style="color: Red;">*</span>and applauded as she maneuvered her power wheelchair to the red carpet and a 28-seat Ford Excursion limousine.
Jerika, friends and family were given an escort fit for presidents with a motorcade of 17 squad cars and a fire truck, all with lights flashing and sirens sounding.
Appleton Police Chief Todd Thomas stepped into the house to offer his best wishes before Jerika<span style="color: Red;">*</span>set off.
“We’re just blessed to be able to help out,” Thomas said. “It’s an honor for us, and what an amazing young lady. She makes you appreciate what you have. She makes you think about using your time wisely. She’s making an impact.”
Multiple television crews greeted Jerika at the banquet hall. Floral bouquets set up on a table<span style="color: Red;">*</span>inside the Grand Meridian lobby had been ordered<span style="color: Red;">*</span>from New York, Washington, Georgia<span style="color: Red;">*</span>and<span style="color: Red;">*</span>Kuwait, among other distant locales. U.S. Rep. Reid Ribble sent flowers.
John Current, along with his wife and daughter, drove from<span style="color: Red;">*</span>Napa, California<span style="color: Red;">*</span>— a drive of more than 31 hours and 2,000 miles<span style="color: Red;">*</span>—<span style="color: Red;">*</span>to celebrate the life of a girl they<span style="color: Red;">*</span>hadn’t met before Friday night. They brought a stuffed animal<span style="color: Red;">*</span>as a gift for Jerika, a thank you, they said,<span style="color: Red;">*</span>for the way she touched<span style="color: Red;">*</span>their hearts with her bravery and attitude.
“It’s inspiring, it’s sad and emotional,” Current<span style="color: Red;">*</span>said. “It’s the whole thing. She just captivated me.”
The long drive<span style="color: Red;">*</span>was worth it<span style="color: Red;">*</span>to see her smile, and “out there on the dance floor looking like she’s living life,” he<span style="color: Red;">*</span>said.
Jen Bolen talks and dances with her daughter Jerika at her prom Friday at the Grand Meridian in Appleton, Wis.<span style="color: Red;">*</span>(Photo: Danny Damiani/USA TODAY NETWORK-Wisconsin)
Pain medications have taken their toll on Jerika, and the prognosis is that her body will soon<span style="color: Red;">*</span>lose the little function it has. She told her mother<span style="color: Red;">*</span>that it is time to die. But first, they agreed, there would be one more summer. And Jerika, a tech-savvy teen with a punk attitude and<span style="color: Red;">*</span>a love of alternative music,<span style="color: Red;">*</span>had a final wish<span style="color: Red;">*</span>— a special prom, a dance party for friends and family to dress in their "fancy" clothes and celebrate one more time.
The family established a GoFundMe page to raise $25,000<span style="color: Red;">*</span>to pay for the prom and to offset expenses in Jerika's final days. The fund had stalled at $7,000 until a story, video and photos about Jerika<span style="color: Red;">*</span>from USA TODAY NETWORK-Wisconsin drew attention around the world a little more than a week ago. The fund has now surpassed $33,000.
When Jerika is placed in hospice care in late August, she’ll go without the ventilator that assists her breathing for 12 hours a day.<span style="color: Red;">*</span>She said she’s at peace with her decision, but worries<span style="color: Red;">*</span>about leaving her mom<span style="color: Red;">*</span>behind to grieve.
So Jerika’s first dance on Friday went to her mother.
Martina McBride’s “In My Daughter’s Eyes” poured from the loud speakers as Jen took her daughter’s hand.
Jen leaned in close and said, “I hope this is the best night of your life.”
How could it not be?
It followed a<span style="color: Red;">*</span>day full of surprises.
On Friday morning, two large flower bouquets arrived at their home as a gift from the California boy band<span style="color: Red;">*</span>New District. The band<span style="color: Red;">*</span>also recorded a video message to Jerika that was played on a big screen during the prom, and moments after, they engaged Jerika in a brief video chat.
Richie Giese, one of Jerika’s favorite YouTube celebrities, dropped in as the biggest surprise of the<span style="color: Red;">*</span>night.<span style="color: Red;">*</span>The electro pop performer, who goes by the name Social Repose, flew in from Washington, D.C., and arrived at the hall in<span style="color: Red;">*</span>full costume, which includes a feather headdress and white face paint. They shared a dance together and later stepped out into the quiet to talk privately.
Giese said he, too, was<span style="color: Red;">*</span>inspired by Jerika’s story. When learning she was a fan who had hoped<span style="color: Red;">*</span>to one day<span style="color: Red;">*</span>video chat with him, he knew he could do better.
“I thought, ‘Let’s just go all the way. I might as well make her day,’” Giese said. “Let’s just push this over the edge.”
Other visitors to Friday's prom<span style="color: Red;">*</span>said they simply felt a need to be there to<span style="color: Red;">*</span>support<span style="color: Red;">*</span>Jerika.
Margaret Norby, a junior at Appleton's Lawrence University, arrived with her<span style="color: Red;">*</span>boyfriend, Jackson Straughan, an LU senior.<span style="color: Red;">*</span>Norby had earlier reached out to the Bolens asking how she might help and had agreed to purchase corsages for the occasion<span style="color: Red;">*</span>—<span style="color: Red;">*</span>though<span style="color: Red;">*</span>the florist later told her they were on the house.
Norby said she was moved by Jerika’s attitude in spite of her heartbreaking condition.
“I don’t know how to describe it,” she said. “She has a situation and an outlook that not everybody has. She has wisdom, and she’s not apologetic about who she is.”
For Jerika, the prom was at times<span style="color: Red;">*</span>overwhelming.
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TERMINALLY ILL WISCONSIN TEEN MAKES DECISION TO DIEMeet Jerika, the 14-year-old who has chosen hospice: part 1 | 0:27Jerika Bolen, 14, who was diagnosed with Type 2 Spinal Muscular Atrophy, has decided to go on hospice and live out her final wishes over the summer including having a prom July, 22, 2016, at the Grand Meridian in Appleton, Wis.
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TERMINALLY ILL WISCONSIN TEEN MAKES DECISION TO DIEMeet Jerika, the teen who will enter hospice this summer: part 2 | 0:21Jerika Bolen, 14, who was diagnosed with Type 2 Spinal Muscular Atrophy, has decided to go on hospice and live out her final wishes over the summer including having a prom July, 22, 2016, at the Grand Meridian in Appleton, Wis.
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TERMINALLY ILL WISCONSIN TEEN MAKES DECISION TO DIEMeet Jerika, the terminally ill teen who "just wants to be happy": part 3 | 0:32Jerika Bolen, 14, who was diagnosed with Type 2 Spinal Muscular Atrophy, has decided to go on hospice and live out her final wishes over the summer including having a prom July, 22, 2016, at the Grand Meridian in Appleton, Wis.
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TERMINALLY ILL WISCONSIN TEEN MAKES DECISION TO DIEJerika Bolen fills the house for prom | 1:06The Grand Meridian ballroom, which holds 1,000 people, was packed as well-wishers flooded in throughout the night to celebrate with Jerika Bolen, 14, diagnosed with spinal muscular atrophy type 2, at her prom Friday, July 22, in Appleton, Wis.
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TERMINALLY ILL WISCONSIN TEEN MAKES DECISION TO DIEJerika's last dance | 2:20Jerika Bolen, 14, who was diagnosed with Type 2 Spinal Muscular Atrophy, has decided to go on hospice and live out her final wishes over the summer including having a prom July, 22, 2016, at the Grand Meridian in Appleton, Wis. Damiel Damiani, The (Appleton, Wis.) Post-Crescent
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USA TODAY
Support floods in for Appleton teen
The size of the crowd and the constant flow of guests stepping over to grab<span style="color: Red;">*</span>selfies<span style="color: Red;">*</span>got<span style="color: Red;">*</span>to be too much<span style="color: Red;">*</span>for Jerika on a few occasions. She’d retreat outdoors or to the restroom in the company of her nurses to the let the stress settle before heading back to the dance floor.
MacKenzie Falck, 13, couldn't help but feel sad<span style="color: Red;">*</span>as the prom neared its final hour. She<span style="color: Red;">*</span>became friends with Jerika during elementary school and said their bond is<span style="color: Red;">*</span>deeper than friendship. She feels like family.
“I know she’ll be with me,” MacKenzie<span style="color: Red;">*</span>said. “She’ll be an angel and she’ll look over me, because that’s what friends do, right?”
Jerika's mother, meanwhile, stood in awe at the outpouring of support that has come her daughter's way in the past week, highlighted by Friday's turnout for the prom.
“It’s a celebration of her life, you know?” Jen said. “It was more than anybody could ever want or wish for<span style="color: Red;">*</span>—<span style="color: Red;">*</span>just a lot of love.”
But as midnight arrived and the lights went on and the<span style="color: Red;">*</span>banquet hall began to empty,<span style="color: Red;">*</span>Jen's emotions began to crack. The reality of what's to come began to settle in. Prom planning had helped take her<span style="color: Red;">*</span>mind off her<span style="color: Red;">*</span>daughter's coming death. Now what?
“I’m really trying hard not to fall apart right now,” Jen said.
“I have to be strong for her."
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Jerika Bolen, 14, who was diagnosed with Type 2 Spinal Muscular Atrophy, has decided to go on hospice and live out her final wishes over the summer including having a prom July, 22, 2016, at the Grand Meridian in Appleton.
Jim Collar: 920-996-7206 or[email protected].; on Twitter @JimCollar<span style="color: Red;">*</span>
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